HELPING FAMILIES WITH HUNTINGTON’S DISEASE
Founded in 2009, HD Reach is a North Carolina-based, “boots on the ground” nonprofit working to improve the care and quality of life of those affected by Huntington’s disease throughout the state. We provide connections to local services, care management, family support, and education.
Latest News & Events
Check out what the NC Triad support group came up with to reflect how we'd like to enjoy our family gatherings especially when we're dealing with the challenges of HD!
Are you a high school senior or enrolled college student caring for a loved one with HD and need some tuition assistance? Caring.com is awarding two $1,500 scholarships to student-caregivers. Be sure to apply before December 31, 2018!
Dr. Bonnie Hennig-Trestman, LCSW, DSW discusses how HD and JHD families can navigate through the holiday season with less stress and more enjoyment.
This 15-month observational study aims to further understand the role of mutant huntingtin protein in disease progression. There is no drug treatment in this study, as the goal is to understand the natural progression of HD. This study will include up to 100 participants with early manifest (Stage I and II) HD at up to 17 sites in Canada, Germany, the United Kingdom and the United States.
Over 1,000 people served since our founding in 2009.
The age of onset typically occurs between the age of 35-50.
5,500 North Carolinians are at risk for developing HD.
1,000 people are affected by HD in North Carolina.
Children of a parent with HD have a 50% chance of inheriting HD.