HELPING FAMILIES WITH HUNTINGTON’S DISEASE
Founded in 2009, HD Reach is a North Carolina-based, “boots on the ground” nonprofit working to improve the care and quality of life of those affected by Huntington’s disease throughout the state. We provide connections to local services, care management, family support, and education.
Latest News & Events
This month, patients with Huntington’s disease are asking for what worked for patients with ALS and other debilitating diseases–parity to accessing Medicare benefits. The request is a focal point for May’s Huntington’s Disease Awareness Month.
Recently the Critical Path Institute announced a new effort - the Huntington’s Disease Regulatory Science Consortium, or HD-RSC. This collaboration with many international partners aims to speed the development of new HD treatments. What’s all this about, and how could it help HD patients?
The updated site is a guide for people who have been denied coverage, reached a limit on your plan (such as copayments, deductibles, yearly visits, etc.), or have an overly large copay or deductible.
RG6042 (formerly known as IONIS-HTTRx ) development program update and presentation of Phase I/IIa study at world’s largest neurology conference.
Over 1,000 people served since our founding in 2009.
The age of onset typically occurs between the age of 35-50.
5,500 North Carolinians are at risk for developing HD.
1,000 people are affected by HD in North Carolina.
Children of a parent with HD have a 50% chance of inheriting HD.