HELPING FAMILIES WITH HUNTINGTON’S DISEASE
Founded in 2009, HD Reach is a North Carolina-based, “boots on the ground” nonprofit working to improve the care and quality of life of those affected by Huntington’s disease throughout the state. We provide connections to local services, care management, family support, and education.
Latest News & Events
Burton Scott, MD, PhD, and Al La Spada, MD, PhD. Scott discusses the cognitive and mental symptoms people with Huntington’s develop, while Al La Spada, MD, PhD, discusses potential treatments for the condition that are under development.
Exciting news for the HD research field this month as a new genetically faithful model has been created in pigs. Using a combination of cutting edge DNA editing tools researchers were able to generate HD pigs that not only replicated the selective brain cell death seen in HD, but also a broad range of symptoms observed in HD.
Watch this video from HDSA on how the swallow function is impacted by HD.
A video of Ann Lassiter, HD Reach's Executive Director, sharing her big takeaways from the Annual HDSA Convention in Los Angeles in June. Ann talks about ways to stay involved in the promising research going on and shares a message of hope!
Over 1,000 people served since our founding in 2009.
The age of onset typically occurs between the age of 35-50.
5,500 North Carolinians are at risk for developing HD.
1,000 people are affected by HD in North Carolina.
Children of a parent with HD have a 50% chance of inheriting HD.