HELPING FAMILIES WITH HUNTINGTON’S DISEASE
Founded in 2009, HD Reach is a North Carolina-based, “boots on the ground” nonprofit working to improve the care and quality of life of those affected by Huntington’s disease throughout the state. We provide connections to local services, care management, family support, and education.
Latest News & Events
Juvenile-onset HD is really rare, but a new study has helped us understand what the symptoms are and how they change over time. This is really important and in time will help us work out whether huntingtin-lowering and other treatments work in kids.
Patients thrill to reports of a promising antisense drug against Huntington disease, but no one is sure yet whether it works.
As a retired Marine and Vietnam Veteran, 72 year old Will Brown is not backing down to HD anytime soon. Just this week, Will climbed Mount Mitchell, the highest peak east of the Mississippi River. “Everyone has a pocketful of excuses to quit trying – be it running or living well with HD. They just need to keep them in their pocket and keep going!”
Over 1,000 people served since our founding in 2009.
The age of onset typically occurs between the age of 35-50.
5,500 North Carolinians are at risk for developing HD.
1,000 people are affected by HD in North Carolina.
Children of a parent with HD have a 50% chance of inheriting HD.