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Movement and Physical Changes

Chorea in HD

"I'm not drunk!"

Chorea consists of involuntary, unpredictable jerking movements.  This is a distinguishing, physical feature of HD. In most cases, people with HD will display cognitive and psychiatric symptoms before the onset of chorea. This can make it difficult to determine, "Is this HD or not?" 

There are many out there that will assume a person who exhibits these symptoms, must be drunk. Of course, we know that is not true. It is so important to advocate and create awareness everywhere you go.

If someone with HD is having trouble with involuntary movements such as fidgeting, grasping and releasing, involuntarily sticking out your tongue, or jerking movements, they can speak with their doctor to learn about medical treatments.  

Teva has developed 2 medications in tablet form to treat chorea (involuntary movements). These 2 medications are the only FDA approved treatments specific to Huntington's Disease. The more recent medication is called Austedo. Teva has made a Doctor Discussion Guide available to help you have a conversation with your physician about the best way to treat your symptoms.  

If you are currently using Teva’s Austedo, their Patient Treatment Tracking Guide can help you work with your care team to get the most benefit. 

Check out the video below from our 2022 Educational Series about treating HD Chorea.