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Strategies/Guide for Caregivers


You may be caring for your Mom or Dad, brother or sister, husband, wife, boyfriend, girlfriend, best friend, neighbor, relative, or co-worker and having strategies that are designed to reduce the challenges of life with HD will make it easier. 

In the Symptoms sections of this website you’ll see that Huntington’s disease progressively changes a person’s brain. These changes make it harder for someone with HD to control their emotions, learn, communicate, understand changes, and adapt to new circumstances. 

The first thing and one of the hardest things a caregiver needs to realize is that they will need to adjust to the needs of the person with HD. A person with HD ability to adapt will erode as the disease progresses.  

All of the suggestions on the following pages are evidence-based and family tested. Talk to HD Reach staff members or join an HD Meet Up to learn more about making these strategies work for you and the person you are caring for.