HELPING FAMILIES WITH HUNTINGTON’S DISEASE
Founded in 2009, HD Reach is a North Carolina-based, “boots on the ground” nonprofit working to improve the care and quality of life of those affected by Huntington’s disease throughout the state. We provide connections to local services, care management, family support, and education.
Latest News & Events
Some would-be parents who might have inherited the fatal gene want their doctors to keep secrets—even from them.
HDYO are excited to announce, that thanks to the support of the community for sharing the impact previous camps have had on their lives, we were able to secure alternative funding and the 2019 North American Youth Camp WILL take place August 11th – 15th at Camp Cedar Glen, Julian CA.
Reporter Allie LaForce and Astros pitcher Joe Smith are testing their embryos to ensure that their child won't have Huntington's disease
Check out this article co-authored by HD Reach's founder and Medical Director Dr. Mary Edmondson. Clinicians treating patients with HD are often not trained to recognize or treat neuropsychiatric symptoms of the disease, according to new guidelines published in JHD.
Over 1,000 people served since our founding in 2009.
The age of onset typically occurs between the age of 35-50.
5,500 North Carolinians are at risk for developing HD.
1,000 people are affected by HD in North Carolina.
Children of a parent with HD have a 50% chance of inheriting HD.