Helping Families with Huntington's Disease
HD Reach is working to improve the care and quality of life for those affected by Huntington’s disease. Founded as a nonprofit in 2009, we provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing.
We’re here for you. Call or Email: 919.803.8128 or email@example.com
If you’d like us to know how to help you better, let's be friends. HD Reach is a private nonprofit organization. All information collected is held in strict confidence. All HD Reach services are provided through community based funding, donations, or private pay.
Check our calendar for upcoming events: Both in-person and virtual. You can register here!
Register for upcoming webinars, or view past recorded webinars. Check out our library!
Say YIKES and move on! Check out our store for all kinds of HD gear. It's one of the easiest ways to become and advocate!
Olivia * Living with JHD
My name is Olivia and I’m 17 years old with Juvenile Huntington’s Disease. I was diagnosed right before my 13th birthday a few years after my father. Living with this terrible disease has changed so much of my life. However, I still attend school and am a senior this year. I also participate in Girl Scouts. My favorite thing is PT where I get to ride Fritz a horse at hippotherapy. I also have a service dog Larry who helps me with walking, retrieving items and can go get my mom if I need help. Everyday I fight this disease.
People served through our family system model of care.
People affected by HD in the US including 1,000 in NC.
Americans at-risk for HD, including 5,500 in NC.