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HD Reach
2409 Crabtree Blvd, Ste 107
Raleigh, NC 27604

Monday through Friday 9 AM - 5 PM

HD Reach
2409 Crabtree Blvd, Ste 107
Raleigh, NC 27604

Monday through Friday 9 AM - 5 PM

If you are experiencing a difficult situation and we're not available here's what you can do.

 

HELPING FAMILIES WITH HUNTINGTON’S DISEASE

Founded in 2009, HD Reach is a North Carolina-based, “boots on the ground” nonprofit working to improve the care and quality of life of those affected by Huntington’s disease throughout the state. We provide connections to local services, care management, family support, and education.

Latest News & Events

If you’re interested in research for treatment of HD and/or worms, you may want to read this article.

HSG announced the initiation of KINECT-HD, a Phase III clinical study of valbenazine, a selective vesicular monoamine transporter 2 (VMAT2) inhibitor, for the treatment of chorea associated with HD.

The length of CAG repeats within the huntingtin (HTT) gene tends to increase as people with Huntington’s disease get older and is directly correlated with poor clinical outcomes, a study has found.

Here’s an interesting article about new research findings that have potential implications for diagnostic testing.


Upcoming HD Reach Events 


Fast Facts

  • Over 1,000 people served since our founding in 2009.
  • The age of onset typically occurs between the age of 35-50.
  • 5,500 North Carolinians are at risk for developing HD.
  • 1,000 people are affected by HD in North Carolina.
  • Children of a parent with HD have a 50% chance of inheriting HD.