Helping Families with Huntington's Disease

There are moments when looking at my mother feels like looking into a future I am trying very hard not to fear. My mother lives in a nursing home now. She is unable to walk, wears adult undergarments, and depends on others for many of her daily needs. I am one of her powers of […]

The post What it’s like when a Huntington’s patient sees decline in their own parent appeared first on Huntington's Disease News.

An early and progressive loss of a protein that helps maintain myelin, or the protective sheath around nerve fibers, may contribute to white matter damage in Huntington’s disease, a study suggests. In a mouse model of Huntington’s, levels of the myelin-associated glycoprotein (MAG) began falling before the loss of other myelin-related proteins and before broader […]

The post Early myelin protein loss may precede nerve fiber damage in Huntington’s appeared first on Huntington's Disease News.

For families affected by Huntington’s disease, some courtroom trials — especially those involving a defendant’s deteriorating mental health — are impossible to watch without feeling the weight of the tragedy at their center. The recent Lindsay Clancy trial is one example. Clancy was a nurse from Massachusetts whose lawyers don’t deny that she killed her […]

The post What Huntington’s disease families can take away from the Lindsay Clancy trial appeared first on Huntington's Disease News.