Helping Families with Huntington's Disease
HD Reach is working to improve the care and quality of life for those affected by Huntington’s disease. Founded as a nonprofit in 2009, we provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing.
We’re here for you. Call or Email: 919.803.8128 or info@hdreach.org
If you’d like us to know how to help you better, let's be friends. HD Reach is a private nonprofit organization. All information collected is held in strict confidence. All HD Reach services are provided through community based funding, donations, or private pay.
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Check our calendar for upcoming events: Both in-person and virtual. You can register here!
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Check out our store for all kinds of HD gear. It's one of the easiest ways to become an advocate!
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Sonya * Living With HDMy name is Sonya Bailey, I am 54 years old and was diagnosed at 49 with Huntington's disease. I first learned about Huntington's when my father was diagnosed with it during the 90s. Huntington's at first was a difficult pill to swallow, but now I am grateful because it's allowed me to be closer to my grandkids and to be part of the awesome community at HDREACH – the sense of community, resources, and friendship they give our family makes me not feel alone in my journey. I always look forward to our monthly gatherings to hang out with everyone.
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People served through our family system model of care.
15,000
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People affected by HD in the US including 1,400 in NC.
41,000
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Americans at-risk for HD, including 8,000 in NC.
200,000
Latest HD News & Research Updates
Latest Huntington's Disease News
Huntington's Disease News, a Bionews site, provides clear, reliable news, research updates, and real-world perspectives to help people living with Huntington's disease and their caregivers feel more informed, confident, and supported throughout their care journey. Information is not meant to replace or provide medical advice.
Huntington’s disease (HD) doesn’t ask about your race before entering your family. It doesn’t examine your ethnicity, cultural background, or socioeconomic status before changing the course of your life. Yet somehow, conversations about who lives with HD have historically centered on certain populations while leaving others feeling like outsiders in their own disease community. As […]
The post When we talk about Huntington’s, we can’t ignore conversations about race appeared first on Huntington's Disease News.
The first U.S. participants has been dosed in the global portion of a clinical trial program testing if Skyhawk Therapeutics’ experimental therapy SKY-0515 can slow the progression of Huntington’s disease. The global portion (NCT07378644) of the Phase 2/3 trial program, called FALCON-HD, is enrolling up to 400 adults, ages 25 and older, with early-stage Huntington’s at […]
The post First US patients dosed in trial of experimental Huntington’s treatment appeared first on Huntington's Disease News.
Years ago, my wife, Jill, who is gene-positive for Huntington’s disease, was visiting a relative in a nursing home when she noticed a troubling interaction between a patient and a staff member in the hallway. She could have kept walking. Instead, she stepped in to calm things down and offered to help. Because Huntington’s is […]
The post I hope someone will notice when my gene-positive wife needs help appeared first on Huntington's Disease News.
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Griffin Foundation -
