Helping Families with Huntington's Disease
HD Reach is working to improve the care and quality of life for those affected by Huntington’s disease. Founded as a nonprofit in 2009, we provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing.
We’re here for you. Call or Email: 919.803.8128 or info@hdreach.org
If you’d like us to know how to help you better, let's be friends. HD Reach is a private nonprofit organization. All information collected is held in strict confidence. All HD Reach services are provided through community based funding, donations, or private pay.
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Check our calendar for upcoming events: Both in-person and virtual. You can register here!
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Check out our store for all kinds of HD gear. It's one of the easiest ways to become an advocate!
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Jeremy * At Risk for HDMy name is Jeremy, and Huntington’s disease has deeply impacted my family. My father, James, passed away on October 3, 2025. He was a devoted father, husband, and grandfather who always tried his hardest to be present, even as HD affected his movement and mind. My mother, Donna, is the hero of our family. She cared for my dad, managed everything at home, and supported me through my own HD testing.
I am forever grateful for both of my parents. Thank you, Mom, for everything.
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People served through our family system model of care.
15,000
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People affected by HD in the US including 1,000 in NC.
41,000
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Americans at-risk for HD, including 5,500 in NC.
200,000
Latest HD News & Research Updates
Latest Huntington's Disease News
Huntington’s Disease News, a Bionews site, provides clear, reliable news, research updates, and real-world perspectives to help people living with Huntington’s disease and their caregivers feel more informed, confident, and supported throughout their care journey. Information is not meant to replace or provide medical advice.
Electroencephalography (EEG), a noninvasive test of electrical activity in the brain, may be a useful tool to help track disease progression in Huntington’s disease, as patients tend to show certain characteristic abnormalities that are associated with symptom severity. “EEG may serve as a potential biomarker for early diagnosis and monitoring of Huntington’s,” the researchers wrote. […]
The post EEG analysis may help track Huntington’s progression, review finds appeared first on Huntington's Disease News.
The first time my wife, Jill, almost cried in front of me, Huntington’s disease (HD) was already part of our story, just not the headline yet. It was there in the background, like a low drumbeat under all the usual early-relationship excitement: new love, big plans, and a future we believed we could completely script ourselves. From […]
The post The boundary that improved communication in our marriage appeared first on Huntington's Disease News.
For a long time, I confused boundaries with rejection. I thought boundaries meant distance. I thought they meant being difficult, cold, or selfish. I thought that if I loved people deeply enough, I should be able to keep showing up, giving, understanding, and absorbing whatever came my way. I believed that being a good person […]
The post True boundary-setting can restore inner peace and improve relationships appeared first on Huntington's Disease News.
A new measure, called the Huntington’s Disease-Behavioral Questionnaire (HD-BQ), effectively captures behavioral symptoms in people with Huntington’s disease, as well as differences between patient reports and those of their companions, a study shows. Companions reported more widespread and severe symptoms than patients, particularly in cognitive domains such as concentration, switching thoughts or activities, judgment, and decisiveness. “By […]
The post Companions report seeing more severe Huntington’s signs than patients appeared first on Huntington's Disease News.
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