HELPING FAMILIES WITH HUNTINGTON’S DISEASE
Founded in 2009, HD Reach is a North Carolina-based, “boots on the ground” nonprofit working to improve the care and quality of life of those affected by Huntington’s disease throughout the state. We provide connections to local services, care management, family support, and education.
Latest News & Events
Every person going through genetic testing for HD has a different experience. Check out Steven Beatty's experience as well as his tips while he faced this incredibly difficult decision.
Check out this publication by HSG that highlights the latest research on HD!
A spotlight on inspiring stories about people living with neurological diseases including HD published by Genentech.
Pain has less of an effect on the daily lives of people with Huntington’s Disease than the general population. Because the area of the brain damaged by Huntington’s is also one of the areas involved in the perception of pain, Huntington’s patients are less burdened by pain. This lack of perception of pain, may result inadequate treatment of ailments. If you want to learn more, check out this article:
Over 1,000 people served since our founding in 2009.
The age of onset typically occurs between the age of 35-50.
5,500 North Carolinians are at risk for developing HD.
1,000 people are affected by HD in North Carolina.
Children of a parent with HD have a 50% chance of inheriting HD.