Helping Families with Huntington's Disease
HD Reach is working to improve the care and quality of life for those affected by Huntington’s disease. Founded as a nonprofit in 2009, we provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing.
We’re here for you. Call or Email: 919.803.8128 or info@hdreach.org
If you’d like us to know how to help you better, let's be friends. HD Reach is a private nonprofit organization. All information collected is held in strict confidence. All HD Reach services are provided through community based funding, donations, or private pay.
-
Check our calendar for upcoming events: Both in-person and virtual. You can register here!
-
Check out our store for all kinds of HD gear. It's one of the easiest ways to become an advocate!
-
Jeremy * At Risk for HDMy name is Jeremy, and Huntington’s disease has deeply impacted my family. My father, James, passed away on October 3, 2025. He was a devoted father, husband, and grandfather who always tried his hardest to be present, even as HD affected his movement and mind. My mother, Donna, is the hero of our family. She cared for my dad, managed everything at home, and supported me through my own HD testing.
I am forever grateful for both of my parents. Thank you, Mom, for everything.
-
People served through our family system model of care.
15,000
-
People affected by HD in the US including 1,000 in NC.
41,000
-
Americans at-risk for HD, including 5,500 in NC.
200,000
Latest HD News & Research Updates
Latest Huntington's Disease News
Huntington’s Disease News, a Bionews site, provides clear, reliable news, research updates, and real-world perspectives to help people living with Huntington’s disease and their caregivers feel more informed, confident, and supported throughout their care journey. Information is not meant to replace or provide medical advice.
A small fragment of the huntingtin protein, called HTT1a, may play an important role in the development of Huntington’s disease, the findings of a mouse study suggest. According to the scientists, this protein fragment was seen to trigger the disease in the mice. When researchers blocked the production of this small fragment in the brains […]
The post Targeting a protein fragment may slow Huntington’s progression: Study appeared first on Huntington's Disease News.
The women in my life — my wife, Jill, and our daughter, Alexus — are the kind who can do absolutely anything they set their minds to. Both would call themselves feminists, not just in words but in the way they live: taking on challenges, speaking their minds, and refusing to let anyone or anything define their limits. […]
The post Designating some chores as ‘blue jobs’ helps my wife share the load appeared first on Huntington's Disease News.
There is a type of grief that isn’t always discussed in the Huntington’s disease community, even though many of us live with it every day. It’s the grief of losing versions of yourself while still being very much alive. I have grieved the loss of some of my abilities. I have grieved the ease with […]
The post Learning how to grieve my life before Huntington’s disease appeared first on Huntington's Disease News.
An interaction between two proteins — one called Rhes and the other Slc4a7 — helps to build tiny tunnels between nerve cells that allow mutant huntingtin protein, the cause of Huntington’s disease, to move from one neuron to another and spread throughout the brain. Those are the findings of a new preclinical study, led by […]
The post Proteins in tiny cell tunnels may be Huntington’s treatment target appeared first on Huntington's Disease News.
Thank you to our generous sponsors:
-
Griffin Foundation -
