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Helping Families with Huntington's Disease

HD Reach is working to improve the care and quality of life for those affected by Huntington’s disease. Founded as a nonprofit in 2009, we provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing.


We’re here for you. Call or Email: 919.803.8128 or

If you’d like us to know how to help you better, let's be friends. HD Reach is a private nonprofit organization. All information collected is held in strict confidence. All HD Reach services are provided through community based funding, donations, or private pay. 

  • James * At Risk for HD
    James * At Risk for HD

    After watching HD take over my aunt’s every move, it became clear she wasn’t safe to live alone. HD Reach helped me find a good place for her to live and figure out how to talk to her about the move. Now, I’m thinking about getting tested and I’m glad I can talk to people who understand.

  • People served through our family system model of care.


  • People affected by HD in the US including 1,000 in NC.


  • Americans at-risk for HD, including 5,500 in NC.


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