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About Us

Welcome to HD Reach

HD Reach is working to improve the care and quality of life of those affected by Huntington’s disease. Founded as a nonprofit in 2009, we provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing.

Who We Are

Where Our Funding Comes From

Why: Our Mission & History

How HD Reach can help if you are affected by Huntington’s disease.

  • Guidance on finding your medical care team 
  • Locating community resources 
  • Strategies for Care Partners for handling HD challenges 
  • Information about HD 
  • Confidential Genetic Testing and Counseling 
  • Connections and Peer Support

What We Do (and Don't Do)

When To Reach Out

Training and Certification

HD Reach care managers are licensed LCSW and MSWs who are CME4HD trained.  They are experienced in making referrals to community organizations' programs and vetting information about programs and services.  

Each care manager participates in more than 64 hours of training annually. 

Connect With HD Reach Today

HD Reach is a judgment-free zone. It is likely that your question or concern is something that has been faced before, and if not, we will face it together, because no one has to do it alone. To find out how HD Reach can help you, call us at 919-803-8128, Monday through Friday, 9 a.m. until 5 p.m. ET or email us at info

If you would like to request assistance to help you navigate complex issues related to life with HD, click on the button below.