HD Reach works with families impacted by Huntington’s disease – a rare, but devastating hereditary disease that causes unwanted movements, psychiatric disorders, and cognitive deterioration. Even though there is no cure for HD, the HD community is remarkably resilient. The Care Navigator’s role is to ensure that people impacted by HD have access to the resources they need and that no one is struggling alone.
HD Reach works with anyone impacted by HD, including people diagnosed with HD, at-risk for HD, care partners, family members, friends, co-workers, teachers, resource providers, police, and medical providers.
The Care Navigator will assist in coordinating care with a client’s healthcare team, complete assessments, develop care plans, provide psychosocial intervention, assist with the disability application process, and facilitate compliance with treatment.
- Working 1:1 with families to help address their greatest challenges including: managing work transitions, accessing medical equipment, making plans for long-term care, increasing care support in the home, food insecurity, legal issues (such as Power-of-Attorney, living wills), and applications for social security and Medicare.
- Continue to build bridges with local long-term care facilities that have residents affected by HD.
- Provide in-services to help educate/train the staff at long-term care facilities.
- Develop relationships with healthcare professionals associated with or independent of HD Centers.
- Provide emotional support and education for people newly diagnosed or at any stage in their HD journey.
- Provide information on genetic testing options, including information on the impact on future insurability.
SKILLS & EXPERIENCE REQUIRED:
- Two years of experience providing mental health services and/or social work.
- Ability to build rapport with clients from diverse backgrounds and experience with setting appropriate therapeutic boundaries.
- Ability to conduct mental health and healthcare needs assessments and identify barriers to care; upon completion of the assessment, ability to consult with medical providers, other agency staff, and community resources as needed to assist the client.
- Willingness to continue to learn about new programs and to educate other HD Reach staff about programs.
- Experience in caring for patients with neurologic, genetic, or neuropsychiatric diseases is preferred.
- Knowledge of motivational interviewing, cognitive behavioral therapy, dialectical behavior therapy, and/or group therapeutic techniques preferred.
- Knowledge of federal, state, and local programs available to assist people with disabilities, health, and mental health needs, low or no income, and other client barriers.
- Valid driver’s license and auto liability insurance are required.
HD REACH WILL PROVIDE:
- Salary in the range of $40,000-$45,000.
- $5,000 health care annual stipend.
- Three weeks of PTO and sick leave.
- Friendly, solution-oriented work environment.
- Rewarding work that will be challenging and allow you to gain expertise.
- On-going training opportunities
Preferred: Charlotte or Winston-Salem areas of NC. Combination of remote, in the field, and travel as needed.
Send resume and cover letter to firstname.lastname@example.org.