According to the latest estimates, 30,000 Americans have HD and it’s estimated another 150,000 Americans have a 50% risk of developing HD. This is the same prevalence as ALS or Cystic Fibrosis.
Huntington’s disease is a rare and incurable progressive genetic disorder where people may experience behavioral disturbances, cognitive decline, and involuntary movements. It can strike at any age, with peak age at onset being between 35 and 50 years old. Each child of an HD-affected parent has a 50% chance of developing HD in their lifetime.
Huntington’s Disease affects people in unique ways—frequently this disease is hard on families because of occupational, financial, social, and emotional consequences that can span generations. Each person with HD experiences symptoms differently, however, the progression can be broken into five general stages, there are typical symptoms, and common approaches to some of the challenges of the disease that caregivers and HD Reach can help with.
HD Reach exists to help you.
We have the experts and the resources in place to guide you and your loved ones on your journey to finding the information you’re looking for while giving you the support you need. No one should have to face HD alone, and with HD Reach you’ll never have to.
2018 HD Education Day video presentation by Drs. Miroslav Cuturic and Mary Edmondson entitled "Busting HD Myths". Dr. Mary Edmondson and Dr. Miroslav Cuturic have a conversation about myths and beliefs that impact how people approach HD. Interpretation, tradition, legends, folklore, and truths are the lens through which we see HD. Health care providers and families together interpret Huntington's disease in ways that color choices and ultimately quality of life. Are our beliefs more powerful than the facts?