HD care begins with the diagnosis and lasts a lifetime. Although there is no cure or direct treatment for HD, the good news is there is always something that can be done to help treat the symptoms of HD. Treating HD and its symptoms involves working with heath care professionals from a variety of fields including neurology, psychiatry, and therapists such as mental health therapists and speech therapists. Managing symptoms will make a huge difference in the quality of life for the person with HD.
Treating HD is an ongoing process that includes treating the symptoms of personality changes, behavior problems, loss of mental skills, and movement problems. It’s never too soon or too late to think about how to access knowledgeable, interdisciplinary care. Knowing what to look for, where to find it, and how to work well with your doctor and other health professionals is essential to your health, wellness and quality of life.
Because HD is not a common disease in the general population, many medical professionals don’t have experience treating HD patients. It’s important to find professionals that are knowledgeable about HD and with whom you respect and feel comfortable. Having a good relationship with members of your care team is important for both the person with HD and the ones who are caring for them. Your relationships should always include trust, open communication and willingness to mutually set goals and treatment strategies.
The impacts of HD are felt throughout a family. Family members may have HD, may be at-risk for HD and may be caring for family with HD. Anyone affected by HD is welcome to contact HD Reach to receive guidance and information on getting care for themselves and those they care about.