HELPING FAMILIES WITH HUNTINGTON’S DISEASE
HD Reach is working to improve the care and quality of life of those affected by Huntington’s disease. Founded as a nonprofit in 2009, we provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing.
How HD Reach can help if you are affected by Huntington’s disease.
- Guidance on finding your medical care team
- Locating community resources
- Confidential Genetic Testing and Counseling
- Information about HD
- Strategies for Care Partners for handling HD challenges
- Connections and Peer Support
We’re here for you. Call or Email: 919.803.8128 or Info@hdreach.org
If you’d like us to know how to help you better, create a profile. HD Reach is a private nonprofit organization. All information is held in strict confidence. All HD Reach services are provided through community based donated funding or are private pay.
Serving 15,000 people through our family system model of care.
The age of onset typically occurs between the ages of 35-50.
The Covid-19 vaccine is safe and effective for anyone affected by HD.
41,000 people are affected by HD in the US including 1,000 in NC.
200,000 Americans are at-risk for HD, including 5,500 in NC.