Helping Families with Huntington's Disease
HD Reach is working to improve the care and quality of life for those affected by Huntington’s disease. Founded as a nonprofit in 2009, we provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing.
We’re here for you. Call or Email: 919.803.8128 or info@hdreach.org
If you’d like us to know how to help you better, let's be friends. HD Reach is a private nonprofit organization. All information collected is held in strict confidence. All HD Reach services are provided through community based funding, donations, or private pay.
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Check our calendar for upcoming events: Both in-person and virtual. You can register here!
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Check out our store for all kinds of HD gear. It's one of the easiest ways to become an advocate!
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Jeremy * At Risk for HDMy name is Jeremy, and Huntington’s disease has deeply impacted my family. My father, James, passed away on October 3, 2025. He was a devoted father, husband, and grandfather who always tried his hardest to be present, even as HD affected his movement and mind. My mother, Donna, is the hero of our family. She cared for my dad, managed everything at home, and supported me through my own HD testing.
I am forever grateful for both of my parents. Thank you, Mom, for everything.
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People served through our family system model of care.
15,000
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People affected by HD in the US including 1,400 in NC.
41,000
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Americans at-risk for HD, including 8,000 in NC.
200,000
Latest HD News & Research Updates
Latest Huntington's Disease News
Huntington’s Disease News, a Bionews site, provides clear, reliable news, research updates, and real-world perspectives to help people living with Huntington’s disease and their caregivers feel more informed, confident, and supported throughout their care journey. Information is not meant to replace or provide medical advice.
Living with Huntington’s disease (HD) has taught me that food is not just about satisfying hunger. Food is energy. Food is stability. Food is comfort. And it is one of the ways I care for a body that is constantly working harder than most people realize. When people think about HD, topics like movement, balance, […]
The post Diet and nutrition: Fueling the body while managing HD symptoms appeared first on Huntington's Disease News.
Interim clinical trial data suggest people with early-stage Huntington’s disease who were treated with the investigational oral therapy SKY-0515 for up to one year had slower disease progression than would be expected based on natural history data. That’s according to new interim data from Part C of a Phase 1/2 clinical trial (ACTRN12623001161617) that is […]
The post SKY-0515 data suggest slower progression in Huntington’s disease appeared first on Huntington's Disease News.
My wife, Jill, and I recently visited the retail store Party City to pick out decorations for her mother’s 80th birthday. Jill held up a glittery banner and asked if it was too much. I joked that nothing could ever be too much for our family. Jill smiled and agreed. Even though Jill describes Party […]
The post Collaboration is key to more accessible Huntington’s disease care appeared first on Huntington's Disease News.
As Huntington’s Disease Awareness Month comes to a close, my heart keeps returning to one word: gratitude. Huntington’s disease (HD) is serious. It can change the way a person moves, thinks, speaks, works, relates, and dreams. It can place an enormous weight on families long before symptoms even appear. It asks caregivers to become advocates, […]
The post The Huntington’s community fills me with gratitude and hope appeared first on Huntington's Disease News.
Thank you to our generous sponsors:
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Griffin Foundation -
