HELPING FAMILIES WITH HUNTINGTON’S DISEASE
Founded in 2009, HD Reach is a North Carolina-based, “boots on the ground” nonprofit working to improve the care and quality of life of those affected by Huntington’s disease throughout the state. We provide connections to local services, care management, family support, and education.
Latest News & Events
HSG announced the initiation of KINECT-HD, a Phase III clinical study of valbenazine, a selective vesicular monoamine transporter 2 (VMAT2) inhibitor, for the treatment of chorea associated with HD.
The length of CAG repeats within the huntingtin (HTT) gene tends to increase as people with Huntington’s disease get older and is directly correlated with poor clinical outcomes, a study has found.
Here’s an interesting article about new research findings that have potential implications for diagnostic testing.
On this episode, long-time Huntington Study Group member Dr. Vicki Wheelock joins us to talk about her involvement in the HD community at UC Davis
Over 1,000 people served since our founding in 2009.
The age of onset typically occurs between the age of 35-50.
5,500 North Carolinians are at risk for developing HD.
1,000 people are affected by HD in North Carolina.
Children of a parent with HD have a 50% chance of inheriting HD.