My Huntington’s Hero is my daughter, Tiffany.
Tiffany was diagnosed with Juvenile Huntington’s Disease with adolescent onset. From the moment we heard those words, our lives changed — but Tiffany never let Huntington’s define who she was. Her battle ended on April 16, 2025, but her spirit, her light, and her strength live on in all of us who love her.
Tiffany was full of life and ambition. She loved animals with her whole heart and dreamed of becoming a veterinarian. She worked hard and made it halfway through school to become a Vet Tech before her disease progressed. Even as Huntington’s tried to slow her down, she continued to push forward toward her goals with determination and courage.
She was an incredible artist, gifted and creative. She loved music, singing at the top of her lungs, decorating for every holiday, dressing up, and throwing parties just because she could. Tiffany brought joy wherever she went. She was outgoing, funny, and there was truly never a dull moment when she was around.
She adored her nieces and nephews and loved them like they were her own children. Her heart was enormous, and her love ran deep. She had a way of making everyone feel special.
Huntington’s may have been part of her story, but Huntington’s did not have her. Tiffany was the epitome of strength. Even on the hardest days, she showed resilience, bravery, and grace that inspired everyone around her. I was blessed beyond measure to be her Momma.
She is terribly missed every single day. But we continue to keep her memory alive through our “Team Tiffany – Hope For a Cure for Huntington’s and Juvenile Huntington’s Disease” Facebook page. We participate in fundraisers, memorials, and advocacy efforts in her honor, determined to fight this disease so that other families may one day have a different ending.
Tiffany is, and always will be, my Huntington’s Hero.
