Skip to main content
Go to Previous Slide Go to Next Slide

Helping Families with Huntington's Disease

HD Reach is working to improve the care and quality of life for those affected by Huntington’s disease. Founded as a nonprofit in 2009, we provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing.

 

We’re here for you. Call or Email: 919.803.8128 or info@hdreach.org

If you’d like us to know how to help you better, let's be friends. HD Reach is a private nonprofit organization. All information collected is held in strict confidence. All HD Reach services are provided through community based funding, donations, or private pay. 

  • Check our calendar for upcoming events: Both in-person and virtual. You can register here!

  • Register for upcoming webinars, or view past recorded webinars. Check out our library!

  • Check out our store for all kinds of HD gear. It's one of the easiest ways to become an advocate!

  • Sonya * Living With HD
    Sonya * Living With HD

    My name is Sonya Bailey, I am 54 years old and was diagnosed at 49 with Huntington's disease. I first learned about Huntington's when my father was diagnosed with it during the 90s. Huntington's at first was a difficult pill to swallow, but now I am grateful because it's allowed me to be closer to my grandkids and to be part of the awesome community at HDREACH – the sense of community, resources, and friendship they give our family makes me not feel alone in my journey. I always look forward to our monthly gatherings to hang out with everyone.

Background Mountain
  • People served through our family system model of care.

    15,000

  • People affected by HD in the US including 1,400 in NC.

    41,000

  • Americans at-risk for HD, including 8,000 in NC.

    200,000

November 5, 2026

Huntington’s Disease Research Opportunity by IQVIA

We are sharing a research opportunity for individuals and families affected by Huntington’s disease.
 
IQVIA is currently conducting a paid market research study in the United States to better understand the experiences and perspectives of people living with Huntington’s disease and their caregivers.
 
Participation involves:
  • A 60-minute virtual interview
  • A short pre-task completed before the interview
  • A $190 honorarium as a thank-you for your time and contribution
  • Participation entirely from home, with no travel required
Interested in participating or learning more?
 
Please contact Laurie Ruel at laurie.ruel@iqvia.com to learn more and find out whether you may be eligible.
Participation is voluntary, and completing the eligibility screening does not guarantee participation in the study.
Please feel free to share this opportunity with other individuals and families affected by Huntington’s disease who may be interested.
 


 

Thank you to our generous sponsors:

MENU CLOSE