We hope to create programs that make you feel supported and good to be there. Whether it is Book Club, our video game club Game Over HD, our North Carolina Meetups, or our brand new Crafting Club, they all serve a purpose to welcome those hesitant to get involved. Recently, we received a message highlighting the impact of our programs for their loved one with HD. There was a communication breakdown that was starting to happen, and creating conversation was becoming more and more difficult. Since being in our programs, their loved one is feeling excitement and is “connecting” again, using their latest experiences from our groups in their conversations. This is the continued hope that through books, gaming, crafting- we all experience an improvement in the quality of our lives when HD works to make it feel impossible.
Helping Families with Huntington's Disease
HD Reach is working to improve the care and quality of life for those affected by Huntington’s disease. Founded as a nonprofit in 2009, we provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing.
We’re here for you. Call or Email: 919.803.8128 or info@hdreach.org
If you’d like us to know how to help you better, let's be friends. HD Reach is a private nonprofit organization. All information collected is held in strict confidence. All HD Reach services are provided through community based funding, donations, or private pay.
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Check our calendar for upcoming events: Both in-person and virtual. You can register here!
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Check out our store for all kinds of HD gear. It's one of the easiest ways to become an advocate!
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Sonya * Living With HDMy name is Sonya Bailey, I am 54 years old and was diagnosed at 49 with Huntington's disease. I first learned about Huntington's when my father was diagnosed with it during the 90s. Huntington's at first was a difficult pill to swallow, but now I am grateful because it's allowed me to be closer to my grandkids and to be part of the awesome community at HDREACH – the sense of community, resources, and friendship they give our family makes me not feel alone in my journey. I always look forward to our monthly gatherings to hang out with everyone.
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People served through our family system model of care.
15,000
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People affected by HD in the US including 1,400 in NC.
41,000
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Americans at-risk for HD, including 8,000 in NC.
200,000
Thank you to our generous sponsors:
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Griffin Foundation -
