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Helping Families with Huntington's Disease

HD Reach is working to improve the care and quality of life for those affected by Huntington’s disease. Founded as a nonprofit in 2009, we provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing.


 

We’re here for you. Call or Email: 919.803.8128 or info@hdreach.org

If you’d like us to know how to help you better, let's be friends. HD Reach is a private nonprofit organization. All information collected is held in strict confidence. All HD Reach services are provided through community based funding, donations, or private pay. 

  • Olivia * Living with JHD
    Olivia * Living with JHD

    My name is Olivia and I’m 17 years old with Juvenile Huntington’s Disease. I was diagnosed right before my 13th birthday a few years after my father. Living with this terrible disease has changed so much of my life. However, I still attend school and am a senior this year. I also participate in Girl Scouts. My favorite thing is PT where I get to ride Fritz a horse at hippotherapy. I also have a service dog Larry who helps me with walking, retrieving items and can go get my mom if I need help. Everyday I fight this disease.

  • People served through our family system model of care.

    15,000

  • People affected by HD in the US including 1,000 in NC.

    41,000

  • Americans at-risk for HD, including 5,500 in NC.

    200,000

How to Give Thanks Today and Every Day

This week, millions of people in the United States gather around to share their thanks for the people in their lives for Thanksgiving. It’s the perfect time of year to be reminded of all we have to be thankful for. Sometimes, saying “thank you” simply doesn’t seem like enough. That’s when it’s time to get creative! From thoughtful gestures to selfless acts of kindness, check out these ways you can show your gratitude, appreciation and thanks today and year-round. 

 

Call Up a Friend

Everybody has their own struggles which can be consuming, especially when they aren’t expressed out loud. Call up a friend or loved one and simply offer to listen to whatever is happening in their lives. We don’t always have to aim to fix a problem in order to feel better—sometimes it just feels good to talk it out. Thank your loved one for sharing, and they’ll most likely feel compelled to ask you the same questions. This is a great way to deepen your relationships and gratitude for one another.

 

Speak Up

Sometimes we think about how much we appreciate somebody and we fail to actually tell them out loud. Make it a goal to vocalize the next time you’re feeling thankful for someone, no matter how big or small. If you don’t remember to tell the person in the moment, there’s always time in the future! 

 

Take Time to Reflect

Sometimes it can feel difficult to express gratitude, especially if everything seems to be going wrong in our lives. The next time you’re feeling spent, take the time to reflect on the things that are going well in your life and the people who mean the most. Write in a journal and make a list. Meditate and think about the people or things you are grateful for. 

 

Invite Someone to Your Table

We’re all human, and sharing a dinner table is an easy way to ignite conversation and remember that we’re all one in the same. Invite somebody new to sit at your table for a meal. You’d be surprised at just how connected we are, even if two people are different from what meets the eye. 

 

Help Those in Need

Consider volunteering or donating this holiday season to help those in need. We live in a world filled with amazing organizations that are aiming to make our planet and communities a better place. Find an organization that resonates with you, and call to ask about available opportunities to volunteer. Many organizations do a great job of letting prospective volunteers or donors view operations and information in advance to get a better understanding of all that they do. 

 

There are many ways you can say ‘thank you’ to the people in your life. Use these ideas both today and year round! Remember, the people in your lives will never know how much they mean to you unless you say it or show it! Next time you’re feeling down, consider reflecting and journaling to remember the things most important to you in your life.

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