Every gift matched up to $30,000. Help ensure no one facing Huntington’s disease walks alone.

We walk beside you with services and programs that ease the burden of HD, providing support, education, connection, information and access to care throughout North Carolina.

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Help, Uplift, and Grow with a monthly HUG donation of any amount.

Help, Uplift, and Grow with a monthly HUG donation of any amount. 

 

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Match Formula

This spring, HD Reach is focusing on one powerful theme: Advocacy.

Thanks to a generous donor and longtime HD advocate and caregiver, every donation will be matched dollar for dollar up to $30,000. That means your gift today goes twice as far in supporting individuals and families across North Carolina affected by Huntington’s disease.

Together, we can ensure every person impacted by HD is supported, heard, and never alone.

Why Your Gift Matters

Awareness
We raise awareness through social media and newsletters, helping more people understand the realities of Huntington’s disease.

Determination
We support clinical research and stand beside families, remaining determined to keep hope alive.

Voice
Every story matters. HD Reach provides a platform where the HD community can be heard.

Outreach
From meetups to health fairs and conferences, we show up across North Carolina to connect and support.

Care
We offer compassionate guidance on medical care, genetic testing, financial planning, and long term care options.

Action
Our events bring people together, inspire volunteerism, and raise critical funds for the HD community.

Community
No one should face HD alone. We are here by phone, email, and in person every step of the way.

You
You are the heart of this mission. Your generosity makes every program, every connection, and every moment of support possible.

HD Reach Staff

“Advocacy is not a luxury. It's a necessity. We advocate for our survival." — Angélique Kidjo

Tiffany Kilby

byAngela Kilby (Mom)

My Huntington’s Hero is my daughter, Tiffany.

Tiffany was diagnosed with Juvenile Huntington’s Disease with adolescent onset. From the moment we heard those words, our lives changed — but Tiffany never let Huntington’s define who she was. Her battle ended on April 16, 2025, but her spirit, her light, and her strength live on in all of us who love her.

Tiffany was full of life and ambition. She loved animals with her whole heart and dreamed of becoming a veterinarian. She worked hard and made it halfway through school to become a Vet Tech before her disease progressed. Even as Huntington’s tried to slow her down, she continued to push forward toward her goals with determination and courage.

She was an incredible artist, gifted and creative. She loved music, singing at the top of her lungs, decorating for every holiday, dressing up, and throwing parties just because she could. Tiffany brought joy wherever she went. She was outgoing, funny, and there was truly never a dull moment when she was around.

She adored her nieces and nephews and loved them like they were her own children. Her heart was enormous, and her love ran deep. She had a way of making everyone feel special.

Huntington’s may have been part of her story, but Huntington’s did not have her. Tiffany was the epitome of strength. Even on the hardest days, she showed resilience, bravery, and grace that inspired everyone around her. I was blessed beyond measure to be her Momma.

She is terribly missed every single day. But we continue to keep her memory alive through our “Team Tiffany – Hope For a Cure for Huntington’s and Juvenile Huntington’s Disease” Facebook page. We participate in fundraisers, memorials, and advocacy efforts in her honor, determined to fight this disease so that other families may one day have a different ending.

Tiffany is, and always will be, my Huntington’s Hero.