Every gift matched up to $30,000. Help ensure no one facing Huntington’s disease walks alone.

We walk beside you with services and programs that ease the burden of HD, providing support, education, connection, information and access to care throughout North Carolina.

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Help, Uplift, and Grow with a monthly HUG donation of any amount.

Help, Uplift, and Grow with a monthly HUG donation of any amount. 

 

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Match Formula

This spring, HD Reach is focusing on one powerful theme: Advocacy.

Thanks to a generous donor and longtime HD advocate and caregiver, every donation will be matched dollar for dollar up to $30,000. That means your gift today goes twice as far in supporting individuals and families across North Carolina affected by Huntington’s disease.

Together, we can ensure every person impacted by HD is supported, heard, and never alone.

Why Your Gift Matters

Awareness
We raise awareness through social media and newsletters, helping more people understand the realities of Huntington’s disease.

Determination
We support clinical research and stand beside families, remaining determined to keep hope alive.

Voice
Every story matters. HD Reach provides a platform where the HD community can be heard.

Outreach
From meetups to health fairs and conferences, we show up across North Carolina to connect and support.

Care
We offer compassionate guidance on medical care, genetic testing, financial planning, and long term care options.

Action
Our events bring people together, inspire volunteerism, and raise critical funds for the HD community.

Community
No one should face HD alone. We are here by phone, email, and in person every step of the way.

You
You are the heart of this mission. Your generosity makes every program, every connection, and every moment of support possible.

HD Reach Staff

“Advocacy is not a luxury. It's a necessity. We advocate for our survival." — Angélique Kidjo

Jesse Lis

byClaire Lind

Jesse Lis is the strongest woman I know. Despite her diagnosis and personal hardships, she continues to display resilience, kindness, and courage everyday. When I look back on what my mom and I have been through I cannot help but marvel at the people we have become. Our experiences have changed the trajectory of our lives. I used to think that was a bad thing. I used to believe that Huntingtons Disease would be the worst thing I would ever go through. Because of my mom, my mindset has changed. Your boundless optimism, unwavering support, and genuine motivation have been the pillars that
held me up during my toughest times. Your ability to make a such bad deal good is something I will carry with me forever. I know that with this mark you have imprinted on me, no matter what I go through, I will be ok. Thank you for encouraging me in my triumphs and for comforting me in my tears. You are my bestfriend and the very definition of a hero.