Every gift matched up to $30,000. Help ensure no one facing Huntington’s disease walks alone.

We walk beside you with services and programs that ease the burden of HD, providing support, education, connection, information and access to care throughout North Carolina.

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Help, Uplift, and Grow with a monthly HUG donation of any amount.

Help, Uplift, and Grow with a monthly HUG donation of any amount. 

 

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Match Formula

This spring, HD Reach is focusing on one powerful theme: Advocacy.

Thanks to a generous donor and longtime HD advocate and caregiver, every donation will be matched dollar for dollar up to $30,000. That means your gift today goes twice as far in supporting individuals and families across North Carolina affected by Huntington’s disease.

Together, we can ensure every person impacted by HD is supported, heard, and never alone.

Why Your Gift Matters

Awareness
We raise awareness through social media and newsletters, helping more people understand the realities of Huntington’s disease.

Determination
We support clinical research and stand beside families, remaining determined to keep hope alive.

Voice
Every story matters. HD Reach provides a platform where the HD community can be heard.

Outreach
From meetups to health fairs and conferences, we show up across North Carolina to connect and support.

Care
We offer compassionate guidance on medical care, genetic testing, financial planning, and long term care options.

Action
Our events bring people together, inspire volunteerism, and raise critical funds for the HD community.

Community
No one should face HD alone. We are here by phone, email, and in person every step of the way.

You
You are the heart of this mission. Your generosity makes every program, every connection, and every moment of support possible.

HD Reach Staff

“Advocacy is not a luxury. It's a necessity. We advocate for our survival." — Angélique Kidjo

Matt and Gina Swanson

byGina Swanson

Gina’s husband Matt was diagnosed with Huntington’s Disease in 2011 at age 55, but began showing symptoms years prior to his formal diagnosis. Matt had a family history of HD, so Gina was familiar with what HD entailed. As Matt’s HD progressed both his physical and mental health declined. Matt was a pilot, a skydiver, a traveler, and an adventurer, but now that had to change. Gina stepped in as his caregiver, but she struggled to find emotional support, resources to learn about HD, and providers that understood her unique situation.

Matt is now 67 and has in-home hospice care. At this point in their journey, Gina found herself alone and in need of support, but didn’t know where to start. A friend referred Gina to HD Reach, where she was connected with a local contact who could personally relate to her unique situation as a wife and caregiver to someone with HD. Gina found comfort in this connection and decided to attend an in person meet up hosted by HD Reach. Gina was able to connect with others in the HD community, and was welcomed with understanding and positivity. Gina continues to navigate the HD journey with her husband and look towards the future - one of continued research, expanded access to care, and a highly personalized support plan developed in partnership with resources she found at HD Reach.

Gina plans on remaining active in the HD community, while providing care to Matt. Gina now feels empowered and supported, thus regaining a sense of self while being a caregiver. She has once again begun to enjoy painting, cooking, and socializing with others within the HD community. Gina stated “I would encourage anyone in my shoes to take a leap of faith and contact HD Reach. I am no longer alone thanks to HD Reach”.