Every gift matched up to $30,000. Help ensure no one facing Huntington’s disease walks alone.

We walk beside you with services and programs that ease the burden of HD, providing support, education, connection, information and access to care throughout North Carolina.

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Help, Uplift, and Grow with a monthly HUG donation of any amount.

Help, Uplift, and Grow with a monthly HUG donation of any amount. 

 

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Match Formula

This spring, HD Reach is focusing on one powerful theme: Advocacy.

Thanks to a generous donor and longtime HD advocate and caregiver, every donation will be matched dollar for dollar up to $30,000. That means your gift today goes twice as far in supporting individuals and families across North Carolina affected by Huntington’s disease.

Together, we can ensure every person impacted by HD is supported, heard, and never alone.

Why Your Gift Matters

Awareness
We raise awareness through social media and newsletters, helping more people understand the realities of Huntington’s disease.

Determination
We support clinical research and stand beside families, remaining determined to keep hope alive.

Voice
Every story matters. HD Reach provides a platform where the HD community can be heard.

Outreach
From meetups to health fairs and conferences, we show up across North Carolina to connect and support.

Care
We offer compassionate guidance on medical care, genetic testing, financial planning, and long term care options.

Action
Our events bring people together, inspire volunteerism, and raise critical funds for the HD community.

Community
No one should face HD alone. We are here by phone, email, and in person every step of the way.

You
You are the heart of this mission. Your generosity makes every program, every connection, and every moment of support possible.

HD Reach Staff

“Advocacy is not a luxury. It's a necessity. We advocate for our survival." — Angélique Kidjo

Rand Paterson

byErin Paterson

Amazingly my dad just turned 80 this year. He has late onset Huntington’s. His symptoms didn’t start until he was in his late fifties, although it is only in hindsight that I can say this. I didn’t know what was going on at the time because HD was kept a secret in my family.

My dad has always been a reserved person but in the past few years I can say that his playful, relaxed and contented side has really come out. Last month when we went to visit him for his birthday a staff member volunteered to take a family photo for us. Just before she was about to take the shot she placed a large hat that looked like a birthday cake on his head. I never could have imagined him wearing a silly birthday hat and my first instinct was to think he wouldn’t like it. But he laughed and smiled for the camera. 

That’s why I chose to share this picture. Because even with all of the hard things that HD brings into our lives there are still things to be grateful for. My dad is still walking with a walker. He is still aware, for the most part, of what is going on. He still makes it down to the dinning room for meals. And on his journey with HD I feel lucky because he has made all the hard decisions for himself along the way so that we didn’t have to. Like giving up his driver’s license, moving into a retirement home, and letting us take care of his finances. 

My dad has been a positive example and it give me hope for my future when I start having symptoms too. I only hope I can go through my journey with as much dignity as him.