Every gift matched up to $30,000. Help ensure no one facing Huntington’s disease walks alone.

We walk beside you with services and programs that ease the burden of HD, providing support, education, connection, information and access to care throughout North Carolina.

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Help, Uplift, and Grow with a monthly HUG donation of any amount.

Help, Uplift, and Grow with a monthly HUG donation of any amount. 

 

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Match Formula

This spring, HD Reach is focusing on one powerful theme: Advocacy.

Thanks to a generous donor and longtime HD advocate and caregiver, every donation will be matched dollar for dollar up to $30,000. That means your gift today goes twice as far in supporting individuals and families across North Carolina affected by Huntington’s disease.

Together, we can ensure every person impacted by HD is supported, heard, and never alone.

Why Your Gift Matters

Awareness
We raise awareness through social media and newsletters, helping more people understand the realities of Huntington’s disease.

Determination
We support clinical research and stand beside families, remaining determined to keep hope alive.

Voice
Every story matters. HD Reach provides a platform where the HD community can be heard.

Outreach
From meetups to health fairs and conferences, we show up across North Carolina to connect and support.

Care
We offer compassionate guidance on medical care, genetic testing, financial planning, and long term care options.

Action
Our events bring people together, inspire volunteerism, and raise critical funds for the HD community.

Community
No one should face HD alone. We are here by phone, email, and in person every step of the way.

You
You are the heart of this mission. Your generosity makes every program, every connection, and every moment of support possible.

HD Reach Staff

“Advocacy is not a luxury. It's a necessity. We advocate for our survival." — Angélique Kidjo

Meghan and Alyson O'Donnell

byKathi O'Donnell

Meghan and Alyson are my JHD Angels. Meghan was diagnosed at the age of 19 while pregnant with Alyson. Alyson was tested before she was born and started with symptoms before her 8th birthday. Meg had a CAG of 68 and Alyson 80. They taught me patience and to live everyday to the fullest. We went on with life as normal, not dwelling on the fact that they had a terminal illness. Meghan passed in May 2017 at 32, Alyson April 2023 at 18.
I will always miss their laughter and their love. I smile with their memories and that they are together again free of HD.