Every gift matched up to $30,000. Help ensure no one facing Huntington’s disease walks alone.

We walk beside you with services and programs that ease the burden of HD, providing support, education, connection, information and access to care throughout North Carolina.

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Help, Uplift, and Grow with a monthly HUG donation of any amount.

Help, Uplift, and Grow with a monthly HUG donation of any amount. 

 

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Match Formula

This spring, HD Reach is focusing on one powerful theme: Advocacy.

Thanks to a generous donor and longtime HD advocate and caregiver, every donation will be matched dollar for dollar up to $30,000. That means your gift today goes twice as far in supporting individuals and families across North Carolina affected by Huntington’s disease.

Together, we can ensure every person impacted by HD is supported, heard, and never alone.

Why Your Gift Matters

Awareness
We raise awareness through social media and newsletters, helping more people understand the realities of Huntington’s disease.

Determination
We support clinical research and stand beside families, remaining determined to keep hope alive.

Voice
Every story matters. HD Reach provides a platform where the HD community can be heard.

Outreach
From meetups to health fairs and conferences, we show up across North Carolina to connect and support.

Care
We offer compassionate guidance on medical care, genetic testing, financial planning, and long term care options.

Action
Our events bring people together, inspire volunteerism, and raise critical funds for the HD community.

Community
No one should face HD alone. We are here by phone, email, and in person every step of the way.

You
You are the heart of this mission. Your generosity makes every program, every connection, and every moment of support possible.

HD Reach Staff

“Advocacy is not a luxury. It's a necessity. We advocate for our survival." — Angélique Kidjo

Joe O'Donnell

Joe was my first born, he tested positive at the age of 24 with a CAG repeat of 51. Joe was an avid sports fan, loved his Steelers, Notre Dame and Kyle Busch. Joe was tested right after his sister and niece, so I found out all three of them had HD within a four-month period. he was around 30 when symptoms started. Joe wasn't as happy as his sister, he was very depressed and angry in the beginning, but as the disease progressed, he seemed to come to terms with it. Joe passed away in July 2023 at the age of 43, 3 months after his niece. So, HD has now taken my family away. I will miss watching NASCAR with him and rooting for his football teams. I am thankful he is at peace now; he had a very rough last 7 months. I know in my heart he is with Meghan and Alyson and that they are happy. I miss the fact he kept me on my toes and was a bit demanding at times. Miss you Joe , I will keep you in my heart forever