Hope Forward. Make an Impact This Winter.

We walk beside you with services and programs that ease the burden of HD, providing support, education, connection, information and access to care throughout North Carolina.

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Help, Uplift and Grow with a monthly HUG donation of any size. Help us get to 20 monthly donors for 2027.

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“We fight, we pray, and we hope for a future that includes better treatments and hopefully a cure.” Amy P

Hope – both a noun and a verb. A feeling of trust and confidence. To trust or rely on an outcome. Forward – generally moving to the front, making progress. To live with HD is to hang onto hope, and to keep making progress. At HD Reach our mission is to offer both.

2026 has been a watershed year for research and care in the HD community. HD Reach continues to provide direction, fellowship and meaningful impact for our HD family. YOU are our why. Your gift is our how.

We honor the legacy of all our loved ones by fulfilling our mission. Our commitment is that no one faces their HD journey alone. Thank you for your previous gifts, and for ensuring that our commitment is a reality for those yet to come. Let’s all live with HOPE FORWARD.

Give in honor of someone special, in memory of a loved one, or just because you can.

Together, we keep HD Reach ready to serve — family.

HD Reach Staff

"When you find someone who truly understands what you are going through, nothing compares." — Anonymous Patient

Kelly Sharpe

My Mom, Kelly Sharpe, was diagnosed with HD at 49 years old. She battled mental illness long before her diagnosis of HD. My Mom was 63 years old when she passed from HD. On May 14, 2024, at 6:03a.m., she took her final breath. She was a prayer warrior that loved Jesus and all Gods people. She struggled many years with the disease, but never developed chorea as most victims of HD usually do. Her symptoms remained to be more of the psych than anything else. It was difficult to grow up with a Mom that changed personalities quickly and had unpredictable mood swings. But in her final year battling HD, she seemed to change for the better. She became more gentle and sweeter and easier to handle. She became more like the Mom I once knew as a child before mental illness and HD set in. I am thankful to God for allowing me to witness her story and fight with HD, so I could be better prepared for how to help support my sister, who tested positive last year, moving forward. HD is an awful disease, but God is in the business of bringing good from even the most difficult situations. I believe my Mom is apart of a much greater story unfolding. I might have tested negative for HD, but I tested positive to being a sinner the moment I was born. This means I am not incapable of falling victim to the many negative effects caused by sin. Moving forward, the best way I can acknowledge my Mom as an HD hero is by acknowledging her unwavering faith and her commitment to prayer. Her fervent prayers were heard more than her temper tantrums. Through her prayers, God saved my Dad and gave him a new life in Christ. Her suffering was not in vain. No ones suffering is in vain. God uses suffering to save. He did this with his Son Jesus 2000 years ago on the cross and he does this still with all his people that believe and follow him today. She has fought the good fight of the faith and is now in paradise with her Lord and Savior. What looks like it was the end…was really only the beginning. I can’t wait to see how God uses her story and ours to help others going through this complex disease and many more of life’s challenges. 
Never give up HOPE.
Which is a Heart Obediently Pursuing Eternity.
With Love,
- Kristen Jobe (2nd of her 4 daughters)