Hope Forward. Make an Impact This Winter.

We walk beside you with services and programs that ease the burden of HD, providing support, education, connection, information and access to care throughout North Carolina.

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“We fight, we pray, and we hope for a future that includes better treatments and hopefully a cure.” Amy P

Hope – both a noun and a verb. A feeling of trust and confidence. To trust or rely on an outcome. Forward – generally moving to the front, making progress. To live with HD is to hang onto hope, and to keep making progress. At HD Reach our mission is to offer both.

2026 has been a watershed year for research and care in the HD community. HD Reach continues to provide direction, fellowship and meaningful impact for our HD family. YOU are our why. Your gift is our how.

We honor the legacy of all our loved ones by fulfilling our mission. Our commitment is that no one faces their HD journey alone. Thank you for your previous gifts, and for ensuring that our commitment is a reality for those yet to come. Let’s all live with HOPE FORWARD.

Give in honor of someone special, in memory of a loved one, or just because you can.

Together, we keep HD Reach ready to serve — family.

HD Reach Staff

"When you find someone who truly understands what you are going through, nothing compares." — Anonymous Patient

Matt and Gina Swanson

byGina Swanson

Gina’s husband Matt was diagnosed with Huntington’s Disease in 2011 at age 55, but began showing symptoms years prior to his formal diagnosis. Matt had a family history of HD, so Gina was familiar with what HD entailed. As Matt’s HD progressed both his physical and mental health declined. Matt was a pilot, a skydiver, a traveler, and an adventurer, but now that had to change. Gina stepped in as his caregiver, but she struggled to find emotional support, resources to learn about HD, and providers that understood her unique situation.

Matt is now 67 and has in-home hospice care. At this point in their journey, Gina found herself alone and in need of support, but didn’t know where to start. A friend referred Gina to HD Reach, where she was connected with a local contact who could personally relate to her unique situation as a wife and caregiver to someone with HD. Gina found comfort in this connection and decided to attend an in person meet up hosted by HD Reach. Gina was able to connect with others in the HD community, and was welcomed with understanding and positivity. Gina continues to navigate the HD journey with her husband and look towards the future - one of continued research, expanded access to care, and a highly personalized support plan developed in partnership with resources she found at HD Reach.

Gina plans on remaining active in the HD community, while providing care to Matt. Gina now feels empowered and supported, thus regaining a sense of self while being a caregiver. She has once again begun to enjoy painting, cooking, and socializing with others within the HD community. Gina stated “I would encourage anyone in my shoes to take a leap of faith and contact HD Reach. I am no longer alone thanks to HD Reach”.