Every Family Matters. Double Your Impact This Winter.

We walk beside you with services and programs that ease the burden of HD, providing support, education, connection, information and access to care throughout North Carolina.

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"HD Reach has provided me with unique opportunities to face challenges associated with Huntington's Disease. I have developed emotional strength, coping skills, confidence, and most importantly a sense of belonging through this community. My life has changed for the better and that change started with HD Reach." H Patton

We all know that Huntington’s disease is a family disease — and that, as of today, there is no cure. Whether you are a person with HD, gene negative, at risk, a care partner, child, sibling, friend, neighbor, physician, or employer, the impact of an HD diagnosis is broad and deeply felt.

Even with the challenges, there is hope, joy, progress, resilience, innovation, adaptation, and companionship along the way.

At HD Reach, we hope you’ll consider us part of your family. We are your boots-on-the-ground resource for support, education, referrals, and community — right here, right now. Wherever you are on the path, HD Reach supports you.

Your gift today will help us maximize a generous $30,000 matching gift by December 31st.

Give in honor of someone special, in memory of a loved one, or just because you can.

Together, we keep HD Reach ready to serve — family.

HD Reach Staff

“Family is not an important thing. It’s everything.” Michael J. Fox

Kelly Sharpe

byKristen Jobe (2nd of her 4 daughters)

My Mom, Kelly Sharpe, was diagnosed with HD at 49 years old. She battled mental illness long before her diagnosis of HD. My Mom was 63 years old when she passed from HD. On May 14, 2024, at 6:03a.m., she took her final breath. She was a prayer warrior that loved Jesus and all Gods people. She struggled many years with the disease, but never developed chorea as most victims of HD usually do. Her symptoms remained to be more of the psych than anything else. It was difficult to grow up with a Mom that changed personalities quickly and had unpredictable mood swings. But in her final year battling HD, she seemed to change for the better. She became more gentle and sweeter and easier to handle. She became more like the Mom I once knew as a child before mental illness and HD set in. I am thankful to God for allowing me to witness her story and fight with HD, so I could be better prepared for how to help support my sister, who tested positive last year, moving forward. HD is an awful disease, but God is in the business of bringing good from even the most difficult situations. I believe my Mom is apart of a much greater story unfolding. I might have tested negative for HD, but I tested positive to being a sinner the moment I was born. This means I am not incapable of falling victim to the many negative effects caused by sin. Moving forward, the best way I can acknowledge my Mom as an HD hero is by acknowledging her unwavering faith and her commitment to prayer. Her fervent prayers were heard more than her temper tantrums. Through her prayers, God saved my Dad and gave him a new life in Christ. Her suffering was not in vain. No ones suffering is in vain. God uses suffering to save. He did this with his Son Jesus 2000 years ago on the cross and he does this still with all his people that believe and follow him today. She has fought the good fight of the faith and is now in paradise with her Lord and Savior. What looks like it was the end…was really only the beginning. I can’t wait to see how God uses her story and ours to help others going through this complex disease and many more of life’s challenges. 
Never give up HOPE.
Which is a Heart Obediently Pursuing Eternity.
With Love,
- Kristen Jobe (2nd of her 4 daughters)