Help HD Reach Bloom!

We walk beside you with services and programs that ease the burden of HD, providing support, education, connection, information and access to care throughout North Carolina.

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Word Cloud
Match Formula

Watch the flowers bloom as we get closer to our match! 

The Canning Family (Tom, Tim, John, Joe, Mary, Ann) legacy revolves around HD. Three generations - but in 2025 they know that HD has not been passed down to the next generation. Amid their challenges living with HD, the Canning Family now offers you an opportunity to tell your own family story, to plant seeds of hope for HD families, and to help HD Reach bloom this spring.

Our spring campaign – Hope for Generations – is supported by a $10,000 match from the Canning Family. Our total goal is to reach $20,000.

Your contribution to the Hope for Generations campaign will support HD Reach programs and services:

  • Resources - weekday coverage of calls for support and resource referral from HD patients and caregivers (over 700 calls a year)
  • Answers - anonymous genetic testing, therapy support before, during and after genetic testing; (since its inception, we have provided testing to over 50 individuals)
  • Connection - monthly in-person support throughout the State (6 locations!)
  • Information - a bi-monthly newsletter full of activities, events, resources and news for the HD community (circulated to over 1200 people each issue)
  • Education - professional training for facility staff, community first responders and physician staff seeking to more deeply serve their families; (virtual and 1:1)
  • and our commitment to deliver HOPE during scary, uncertain times (for 15 years!)

Please help us reach our goal of $20,000! This campaign ends on June 6, 2025. 

Thank you for considering a gift to HD Reach. Our community is a better place to live because of people just like you.

HD Reach Staff

Matt and Gina Swanson

byGina Swanson

Gina’s husband Matt was diagnosed with Huntington’s Disease in 2011 at age 55, but began showing symptoms years prior to his formal diagnosis. Matt had a family history of HD, so Gina was familiar with what HD entailed. As Matt’s HD progressed both his physical and mental health declined. Matt was a pilot, a skydiver, a traveler, and an adventurer, but now that had to change. Gina stepped in as his caregiver, but she struggled to find emotional support, resources to learn about HD, and providers that understood her unique situation.

Matt is now 67 and has in-home hospice care. At this point in their journey, Gina found herself alone and in need of support, but didn’t know where to start. A friend referred Gina to HD Reach, where she was connected with a local contact who could personally relate to her unique situation as a wife and caregiver to someone with HD. Gina found comfort in this connection and decided to attend an in person meet up hosted by HD Reach. Gina was able to connect with others in the HD community, and was welcomed with understanding and positivity. Gina continues to navigate the HD journey with her husband and look towards the future - one of continued research, expanded access to care, and a highly personalized support plan developed in partnership with resources she found at HD Reach.

Gina plans on remaining active in the HD community, while providing care to Matt. Gina now feels empowered and supported, thus regaining a sense of self while being a caregiver. She has once again begun to enjoy painting, cooking, and socializing with others within the HD community. Gina stated “I would encourage anyone in my shoes to take a leap of faith and contact HD Reach. I am no longer alone thanks to HD Reach”.