Afraid you have early symptoms of Huntington’s Disease? Does a family member have obvious chorea or intellectual decline, but is reluctant to see a doctor? Are you making plans for your future and wonder if part of your decision-making process should include genetic testing? Do you think you need information or help, but the thought of actually contacting someone is a terrifying experience?
HD Reach is here to help you through that transition on the way to getting the answers you’re looking for. We will help you determine what concerns are most important, guide you through an appointment, and help you prepare for what to expect from the visit. We may have some tips about how to reduce the stress of the trip to the doctor for you and your loved one. Our goal is to help you know what to expect during that first, very important visit.
Wake Forest University HD Clinic
Francis Walker, MD, Director
Contact: Christine O’Neill, Research Coordinator
Phone: (336) 716-8611
Richard Janeway Clinical Science Tower, 4th floor
Winston-Salem, NC 27157
Phone: (336) 716-4101
Fax: (336) 716-7794
http://www.wakehealth.edu/Neurosciences/Movement-Disorders-Center/Conditions.htm
Duke University HD Clinic
Burton Scott, MD, Director
Contact: Clinic Coordinator/Social Worker - Allison Allen, MSW, LCSW
Phone: (919) 668-2879
Email: Allison.m.allen@duke.edu
Contact: Clinic Coordinator/Social Worker - Katie Durham, MSW, LCSW
Phone: (919) 668-2879
Email: Katie.durham@duke.edu
Request appointment at HD Clinic via the appointment line (919) 668-7600
932 Morreene Road
Durham, NC
http://www.dukehealth.org/services/neurological_disorders/care_guides/huntingtons_disease
UNC Genetic Testing Clinic
Genetic Counselor: Kate Foreman
Contact: LaTonya Williams, Office Manager
Phone: (919) 843-8724
Room 1071, 1st Floor Memorial Hospital
101 Manning Drive, CB#7487
Chapel Hill, NC 27514
(984) 974-1401
(919) 966-1595
https://www.med.unc.edu/genetics/for-patients-and-providers/unc-adult-genetics-clinic
Huntington’s Disease Clinic - University of South Carolina
Miroslav Cuturic, MD, Medical Director
Phone: (803) 545-6104
Janice Edwards, Genetic Counselor
Phone: (803) 545-5706.
http://geneticcounseling.med.sc.edu/patientcare/huntington.clinic.asp
In addition to clinical services, they offer assessments and referrals for counseling, psychiatric services, physical therapy, occupational therapy, and speech therapy. Appointments for HD Clinic are scheduled on Fridays and can be made by calling USC Genetic Counseling at 803-545-5775.
