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In-person workshops throughout the state will be provided on a quarterly basis to teach strategies that have been shown to reduce irritability in people with HD. You will receive behavior logs, a family safety plan, and educational materials. These workshops are designed for caregivers, family, and friends.

In preparation for making decisions such as genetic testing, people at-risk for HD will work with a Patient Navigator and a licensed clinician who will help develop skills and coping mechanisms. A final evaluation by a psychiatrist will also be offered. All information will be kept confidential unless you tell HD Reach otherwise.

To obtain genetic testing for HD, the Decision Path is a prerequisite. This highly confidential path includes the genetic blood test performed by a licensed phlebotomist using a pseudonym. In addition, the patient and their support system will receive their testing results in-person. Regardless of the testing outcome, a personalized post-testing plan will be provided.

A care management specialist will create a personalized plan designed in consideration of your loved one’s long-term health care needs and their “Five Wishes”. While we cannot guarantee finding a placement, we can ease the burden of making these difficult and time-consuming decisions.

A two-hour, in-person training session on best practices for care of people with HD includes a PowerPoint presentation, educational materials, and a question and answer period specific to the needs of the resident(s) in care. Topics will include calming irritability and aggression, nutrition, commonly prescribed medications, behavior modifications, and assistance with developing or updating a care plan.

HD reach offers confidential on-going teletherapy that will focus on teaching techniques to help with issues such as anxiety, depression, and trauma. Licensed therapists offer Cognitive Behavioral Therapy to help negotiate life’s journey as it relates to HD.