Dr. Robert Trestman, a nationally recognized expert in psychiatry and population health who is a Professor and Chair of the Department of Psychiatry and Behavior Medicine at Virginia Tech and the Carilion Clinic provides some great advice on how to battle anxiety during the Coronavirus crisis. Dr. Trestman will be a featured speaker at the HD Reach Educational Conference.
One a very private person, the other an extremely public person. Both have Huntington’s Disease.
There are many sad stories related to HD and this is one of them. If this topic stirs up conversations or emotions, please remember that we are always here for you.
There’s a 50% probability Danielle could inherit the disease her mum has. After taking a test, she’s about to find out. Would you want to know?
The ability to predict HD onset is getting closer. Read more about current research
For the entire month of February, City Kitchen Chapel Hill will donate $5 from each Giveback Community Cocktail sold! Have a cocktail while supporting all of the families that rely on HD Reach to be a source of information, compassion and care.
New research from Duke University has found new roles for Huntington’s Protein. Read here if you want to learn how this piece of information may inform future treatments for HD.
HD Buzz has filtered out some of the noise about the Wave huntingtin-lowering trial announcement and explained how real progress is being accomplished in the effort to find safe and effective treatments for Huntington’s Disease.
Take this quiz.
New research raises questions about how early the mutant HD gene is impairing the brain’s development.
If you’re interested in research for treatment of HD and/or worms, you may want to read this article.
HSG announced the initiation of KINECT-HD, a Phase III clinical study of valbenazine, a selective vesicular monoamine transporter 2 (VMAT2) inhibitor, for the treatment of chorea associated with HD.
The length of CAG repeats within the huntingtin (HTT) gene tends to increase as people with Huntington’s disease get older and is directly correlated with poor clinical outcomes, a study has found.
Here’s an interesting article about new research findings that have potential implications for diagnostic testing.
On this episode, long-time Huntington Study Group member Dr. Vicki Wheelock joins us to talk about her involvement in the HD community at UC Davis
Debbi-Fox Davis joined Help4HD Live! Listen as she discusses our new Pathway Membership program!
UniQure announces key details of its planned trial to assess the safety and ability of AMT-130 gene therapy to lower the problematic huntingtin protein using a ‘single-shot’ virus delivery system.
Huntingtin’s Seeding Activity a Potential Early Biomarker of Huntington’s Disease, Study Says
Some helpful tips for dealing with dementia behavior.
You know volunteering has a positive influence (make friends, build connections, gain experiences, etc.), but did you know that it can actually assist your health?
Every person going through genetic testing for HD has a different experience. Check out Steven Beatty's experience as well as his tips while he faced this incredibly difficult decision.
Check out this publication by HSG that highlights the latest research on HD!
A spotlight on inspiring stories about people living with neurological diseases including HD published by Genentech.
Pain has less of an effect on the daily lives of people with Huntington’s Disease than the general population. Because the area of the brain damaged by Huntington’s is also one of the areas involved in the perception of pain, Huntington’s patients are less burdened by pain. This lack of perception of pain, may result inadequate treatment of ailments. If you want to learn more, check out this article:
This article is not specifically about Huntington's Disease, but another genetic disease and how this family dealt with the challenges that came with it.
Some would-be parents who might have inherited the fatal gene want their doctors to keep secrets—even from them.
Reporter Allie LaForce and Astros pitcher Joe Smith are testing their embryos to ensure that their child won't have Huntington's disease
Check out this article co-authored by HD Reach's founder and Medical Director Dr. Mary Edmondson. Clinicians treating patients with HD are often not trained to recognize or treat neuropsychiatric symptoms of the disease, according to new guidelines published in JHD.
First Patients enrolled in HD Natural History and Phase III GENERATION HD1 clinical trials!
A method called quantitative electroencephalography (qEEG) enables the identification of Huntington’s gene carriers and could become a disease biomarker, according to a pilot study.
Update on RG6042 GENERATION HD1 Study: Expected Sites in USA & Canada
Check out what the NC Triad support group came up with to reflect how we'd like to enjoy our family gatherings especially when we're dealing with the challenges of HD!
Are you a high school senior or enrolled college student caring for a loved one with HD and need some tuition assistance? Caring.com is awarding two $1,500 scholarships to student-caregivers. Be sure to apply before December 31, 2018!
Dr. Bonnie Hennig-Trestman, LCSW, DSW discusses how HD and JHD families can navigate through the holiday season with less stress and more enjoyment.
This 15-month observational study aims to further understand the role of mutant huntingtin protein in disease progression. There is no drug treatment in this study, as the goal is to understand the natural progression of HD. This study will include up to 100 participants with early manifest (Stage I and II) HD at up to 17 sites in Canada, Germany, the United Kingdom and the United States.
Caregiving is a valuable position in our HD community which often goes unrecognized. Let's look at what National Family Caregivers Month is and how you can celebrate it.
Shop Amazon through Nov 2, 2018 and you can support our work, AmazonSmile is donating 5% (ten times the usual amount) to HD Reach!
Two proteins present in the blood and brains of patients with Huntington’s disease may be used as biomarkers to detect the earliest changes caused by the disease, according to recent research.
Juvenile-onset HD is really rare, but a new study has helped us understand what the symptoms are and how they change over time. This is really important and in time will help us work out whether huntingtin-lowering and other treatments work in kids.
Patients thrill to reports of a promising antisense drug against Huntington disease, but no one is sure yet whether it works.
Through unified communities, regardless of geographic location, HD patients and families can join together to change the landscape of opportunities for similar families to come.
The LEGATO-HD trial of laquinimod to slow progression of Huntington’s disease did not meet its primary endpoint. What’s an endpoint, and what does this all mean for HD families?
Burton Scott, MD, PhD, and Al La Spada, MD, PhD. Scott discusses the cognitive and mental symptoms people with Huntington’s develop, while Al La Spada, MD, PhD, discusses potential treatments for the condition that are under development.
Exciting news for the HD research field this month as a new genetically faithful model has been created in pigs. Using a combination of cutting edge DNA editing tools researchers were able to generate HD pigs that not only replicated the selective brain cell death seen in HD, but also a broad range of symptoms observed in HD.
Watch this video from HDSA on how the swallow function is impacted by HD.
A video of Ann Lassiter, HD Reach's Executive Director, sharing her big takeaways from the Annual HDSA Convention in Los Angeles in June. Ann talks about ways to stay involved in the promising research going on and shares a message of hope!