HELPING FAMILIES WITH HUNTINGTON’S DISEASE
Founded in 2009, HD Reach is a North Carolina-based, “boots on the ground” nonprofit working to improve the care and quality of life of those affected by Huntington’s disease throughout the state. We provide connections to local services, care management, family support, and education.
Latest News & Events
A video of Ann Lassiter, HD Reach's Executive Director, sharing her big takeaways from the Annual HDSA Convention in Los Angeles in June. Ann talks about ways to stay involved in the promising research going on and shares a message of hope!
June update: Getting to know Roche/Genentech and their philosophy on working with the HD patient community, commitment to collaborate to advance science, and the investigational molecule RG6042 development program.
A recent article reports that aggression is common in individuals with Huntington's disease. Authors report rates of aggressive behaviors between 22% (for clinic patients) and 66% (for hospitalized patients) among individuals with HD. What do they mean by aggression, and how should we interpret these numbers? It is important to remember that aggression (as defined in this article) and violence are NOT the same thing.
This month, patients with Huntington’s disease are asking for what worked for patients with ALS and other debilitating diseases–parity to accessing Medicare benefits. The request is a focal point for May’s Huntington’s Disease Awareness Month.
Over 1,000 people served since our founding in 2009.
The age of onset typically occurs between the age of 35-50.
5,500 North Carolinians are at risk for developing HD.
1,000 people are affected by HD in North Carolina.
Children of a parent with HD have a 50% chance of inheriting HD.