As recently as 2016, the Huntington’s Society of America has said one in every 10,000 Americans has HD and it’s estimated at least 150,000 other Americans have a 50% risk of developing HD. Huntington’s disease is a rare and incurable progressive genetic disorder where people may experience behavioral disturbances, mental deterioration, and uncontrolled movements. One of the many startling things about HD is it can strike at any age, with peak age on onset between 35 and 45 years old. Additionally, each child of an HD-affected parent has a 50% chance of developing Huntington’s Disease in their lifetime.
HD Reach is a nonprofit that exists to help you. We have the experts and the resources in place to guide you and your loved ones on your journey to finding the information you’re looking for while giving you the support you need. No one should have to go through living with HD alone, and with HD Reach you’ll never have to.