Our board represents a cross-section of our community and has a passion for our organization and those we serve. The members work hard to ensure long-term sustainability of the organization and oversee that the funds raised directly affect those in need.
Glen Snavely, Chair
Glen currently serves as the board chair for HD Reach. He lives in Raleigh and is a purchasing manager for SCM Metal Products who he has been employed with for 43 years. Glen received his mechanical engineering degree from the University of Pittsburgh. Glen was one of the HD Reach founding board members back in 2009, and he has previously served as the HD Reach Governance Committee Chair.
When Glen was asked why he accepted the role of board chairman he said, “HD Reach founder Dr. Mary Edmondson was instrumental in improving the lives of my wife, Jean, and me when Huntington’s began to have a negative impact on us. HD Reach board membership was a way for me to give back and help others live better with HD.”
Chad Merrell, Secretary
Chad is a HealthCare sales executive with over 15 years of executive level sales experience. He has been a part of HD Reach from the beginning with his wife being the founding treasurer of the organization. Chad is a graduate of the University of North Carolina with degrees in biology and chemistry. Chad currently lives in Raleigh with his wife Christie Vann who is gene positive for HD. When asked why he accepted the role on the board for HD Reach he said, “I have seen the great value HD Reach provides to families affected by Huntington’s disease. Having seen the difference HD Reach has made in the lives of HD families, I wanted to assist in continuing the great mission of the organization.”
Chris Michalak - Treasurer
Chris has lived in Cary, NC since 1996 and is the newest board member of HD Reach, coming on board in 2018. Chris worked for IBM in various financial and management positions for thrity years in North Carolina and Colorado. He currently serves as the financial manager for Economy Exterminators. Chris was active in the Capital Area Soccer League as a coach for several years and served as the Committee Chairman for Boy Scout Troop 209. He has been treasurer for his HOA since 2014. Chris is excited to work with HD Reach to help those impacted by this condition.
Terry has a master's degree in history, and for 45 years she taught history at Burlington High School in Burlington, Vermont. As a teacher, she was active in fundraising for student field trips and to fund the International Student Award--an academic scholarship she established. As president of the Teachers’ Union for 12 years, she negotiated teacher contracts, served as grievance chair for 20 years, and worked with the local school board on budgets for schools in her district. She was awarded the Susan B. Anthony Award, the Making a Difference Award, and twice recognized as Teacher of the Year for Vermont by the Vermont History Day Contest.
Terry retired in 2015 and now has her own business designing jewelry. Terry generously donates all proceeds from sales of her jewelry to HD Reach. When asked her reason for wanting to participate on the HD Reach Board of Directors, Terry stated, "Throughout my career as a history teacher, my major focus was to make the world a better place. HD Reach offers me the opportunity to do just that for so many people.”
Cindy is the president of GiftMaker Systems, LLC, an independently owned design and manufacturer of pre-wrapped kits. She and her husband started the company 21 years ago. Cindy is an active volunteer in the community. For years, she has volunteered with PTA , Junior League of Raleigh, Good Shepherd Soup Kitchen, Wake Education Pieces of Gold, Step-Up Ministries, the Women’s Board/ecumenical chair of White Memorial Presbyterian Church, Wake Educational Partnership and the Women’s Business Enterprise National Council.
Originally from Greenville, Cindy lives in Raleigh with her husband Tim, and their cat, BT. When asked why she wanted to be a part of HD Reach, she said, "My sister-in-law, Mary Edmondson, had a dream which she shared, and that was all that it took. A beautiful picture had been painted, and she knew she had to be a part of it. Together, we "all" can make a difference.”
Isil is the art director and head photographer for Feature Publication, a locally owned company that publishes Feature magazine which focuses on fashion, art, business, and lifestyle interests. She is a professional photographer who specializes in weddings, portraiture, and fashion. Her work has been nominated for Rangefinder’s 30 Rising Stars of Wedding Photography. She is a member of the Professional Photographers of America and Fearless Photographers.
Isil lives in Charlotte with her husband. When asked her reason for serving on the board of HD Reach, she said, “My dad passed away from HD, and I’ve been involved with HD Reach for several years. I wanted to help HD Reach and the community so we can make a difference in others' lives.”
Susan grew up in Winston-Salem where her parents instilled in her a sense of volunteerism and community service. She is a 2010 graduate from the University of South Carolina with a double major in Spanish and Religious Studies. She worked at several international nonprofits after graduating, one of which took her to Nairobi, Kenya, where she helped match children orphaned by AIDS with domestic and international adoptive parents. Unfortunately, her time and interest in Foreign Service were cut short in Kenya when the country went to war with Somalia and Nairobi became increasingly dangerous. She returned to the US, where she worked for the State Employees’ Credit Union in Winston-Salem and Raleigh for three years, before deciding to go back to school for a Master’s in Business Administration.
While attending graduate school at the University of Wisconsin-Madison, Susan was a board member for The Road Home (TRH) Dane County. TRH helped families experiencing homelessness find stable housing. She was on the development committee and helped organize the Annual Breakfast for TRH (which raised over $400,000) and scheduled tours of the TRH day shelter where families had access to showers, laundry, and the internet. She also volunteered through MBAs with a Heart. This included leading tours of the zoo to children with developmental disabilities and taking the “Polar Plunge” two years in a row to raise money for the Special Olympics. Susan completed her MBA in May 2017 in Corporate Finance and Investment Banking and moved back to Raleigh where she is training to be a Wealth Management Advisor through the Financial Advisor Development Program at Merrill Lynch.
When asked why she would like to serve on the Board of HD Reach, she said "I would like to continue to support the community by working with HD Reach. Though I do not have a family member with Huntington’s disease, I will use my past non-profit and volunteer experiences, as well as my passion for supporting the community, to bolster and assist families affected by HD so that they have access to the resources and support they need."
Daniel P. van Kammen MD, PhD, FACNP
Daniel is a pharmaceutical physician executive with 18 years of experience in CNS Clinical Development and Translational Medicine. He is a Board-Certified psychiatrist with a PhD in Pharmacology from the University of Utrecht, in the Netherlands. He was a CMO at the CHDI Foundation for 3½ years, where he was responsible for establishing the clinical development strategy and infrastructure for CHDI’s discovery pipeline, including longitudinal observation studies, disease progression and target engagement biomarker assessment, development of needed clinical endpoints such as novel functional rating scale (FuRST-pHD) and cognitive assessment battery for prodromal/premanifest HD patients (CAB-HD), developing treatment guidelines, overseeing global patient registries and international clinical networks. He organized for EMA the HD part of the ADAD-HD meeting in 2010 on disease modification. Formerly, Dan occupied increasingly senior positions in clinical development at Johnson & Johnson, and was head of Phase 1 and 2 for CNS at Aventis (now Sanofi). Before joining the industry in 1998, he was an internationally recognized Schizophrenia researcher at the NIMH for 10 years and 15 years at the University of Pittsburgh (professor emeritus). Dan received his training in Psychiatry at Johns Hopkins Medical Institutions. He has published over 350 scientific papers, edited a book series on mental health research, and holds 14 patents regarding drug treatment of Post-Traumatic Stress Disorder, Autism, Schizophrenia, Sleep Disorders, and Parkinson’s Psychosis. He is a Distinguished Life Fellow APA and member of the working group of the NINDS HD Common Data Elements. Dan is presently an independent CNS clinical development consultant with a focus on neurodegenerative disorders.
Dan accepted an invitation on the HD Reach Board of Directors because of his personal and professional interest in the treatment of patients with Huntington’s Disease and is committed to increasing the quality of care for HD patients and their families, and to improving access to research participation.
Barb is a true gift to HD Reach and has served as past treasurer of the HD Reach Board. She lives in Cary and is retired after 34 years with SCM Corporation in various financial positions. In addition to volunteering her time to HD Reach, she is active in community service through Meals on Wheels of Wake County, Family Promise of Wake County, Saint Francis United Methodist Church. Barbara has also served as a past board member of Lochridge Cluster HOA, and currently serves that association as its board president. She began volunteering with HD Reach because she saw a need for someone to handle bookkeeping and human resources functions.