“The Lion’s Mouth Opens” at the Full Frame Documentary Film Festival this weekend

“The Lion’s Mouth Opens”  at the Full Frame Documentary Film Festival Saturday April 5th ~ 4:00 – 6:00 P.M. Where: DURHAM ARTS COUNCIL  [DAC] 120 Morris Street – PSI Theater http://www.fullframefest.org   The documentary follows LA-based actor Marianna Palka, whose father suffers from Huntington’s Disease, a crippling neurodegenerative disorder that debilitates both the mind and body, …

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9th Annual Tom Moore 5K Run/Walk for Huntington’s Disease

Fundraiser April 12 to benefit Huntington’s disease research http://www.news.appstate.edu/2014/03/17/huntingtons-disease-research-fundraiser/ The 9th Annual Tom Moore 5K Run/Walk for Huntington’s Disease will be held Saturday, April 12, at the Boone Greenway. The event is sponsored by students in Appalachian State University’s Recreation Management program. The race will begin at 9 a.m., with registration beginning at 8 a.m. All …

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Healthy Recipes for People with HD

Healthy recipes for people with HD

Check out these recipes prepared by a dietitian and published by HDSA for people with HD that were shared during the 2011 National HDSA Convention. They feature nutritious food that is high in calories prepared in a manner that reduces choking risk. http://www.hdsa.org/images/content/1/4/14966.pdf  

Scholarships available to attend the 29th Annual HDSA Convention in Louisville, KY

HDSA has created a scholarship fund to provide financial assistance for families and individuals to attend the 29th Annual Convention in Louisville, KY, June 20-22, 2014.   The Scholarship will help attendees cover travel, hotel and registration fees.   Click on the following link for more information: http://www.hdsa.org/living-with-huntingtons/national-convention/financial-aid/index.html   NOTE: This scholarship is …

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CHDI Foundation and Genzyme enter agreement to develop novel virally delivered gene-silencing therapeutic for Huntington’s disease

New York, NY, February 21 2014 – CHDI Foundation, Inc. and Genzyme Corporation have entered into a collaboration to develop adeno-associated virus delivery of a novel gene silencing therapeutic approach for Huntington’s disease. The agreed research plan encompasses the development of a therapeutic clinical candidate that will aim to lower …

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