A Caregiver’s Bill of Rights

Steve Schlecta, coordinator for the Triad Support Group, sent us this great list that applies to all caregivers. Let us know what you think!
A Caregiver’s Bill of Rights
By Jo Horne
I have the right:
To take care of myself. This is not an act of selfishness. It will give me the capability of taking better care of my loved one.
To seek help from others even though my loved ones may object. I recognize the limits of my own endurance and strength.
To maintain facets of my own life that do not include the person I care for, just as I would if he or she were healthy. I know that I do everything that I reasonably can for this person, and I have the right to do some things just for myself.
To get angry, be depressed, and express other difficult feelings occasionally.
To reject any attempts by my loved one (either conscious or unconscious) to manipulate me through guilt, and/or depression.
To receive consideration, affection, forgiveness, and acceptance for what I do, from my loved ones, for as long as I offer these qualities in return.
To take pride in what I am accomplishing and to applaud the courage it has sometimes taken to meet the needs of my loved one.
To protect my individuality and my right to make a life for myself that will sustain me in the time when my loved one no longer need my full-time help.
To expect and demand that as new strides are made in finding resources to aid physically and mentally impaired persons in our country, similar strides will be made towards aiding and supporting caregivers.

Philanthropists give millions to HD Research

Check out this article on Businessweek.com. Reporter Zachary Mider gives a detailed account of some of the largest philanthropic organizations in the country, one of which supports HD research by giving $100 million a year towards finding treatments and a cure. http://www.businessweek.com/articles/2014-05-08/three-mysterious-philanthropists-fund-fourth-largest-u-dot-s-dot-charity#p1

“The Lion’s Mouth Opens” at the Full Frame Documentary Film Festival this weekend

“The Lion’s Mouth Opens”  at the Full Frame Documentary Film Festival Saturday April 5th ~ 4:00 – 6:00 P.M. Where: DURHAM ARTS COUNCIL  [DAC] 120 Morris Street – PSI Theater http://www.fullframefest.org   The documentary follows LA-based actor Marianna Palka, whose father suffers from Huntington’s Disease, a crippling neurodegenerative disorder that debilitates both the mind and body, …

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